Nothing beats the joy of a couple than bringing home their first child.

However, when a child is born sick or disabled, it might be a nightmare to their parents.

This is exactly what happened to the parents of Evan Fasciano.

Evan Fasciano

Evan Fasciano. Photo: @GospelCrusaderSource: Twitter

Evan Fasciano was born nine weeks premature at the Yale-New Haven Children’s Hospital.

He was born with a rare skin condition that makes his skin grow at a faster rate.

Thedoctorshad discovered that their unborn baby would have a rare and terrible skin condition.

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Thedisorderwould be so severe that it had a likelihood of claiming his life.

Even after receiving this heartbreaking news, his parents were ready to receive their bundle of joy.

Thenewborn’s eyeswere covered with lots of crust that they could not open.

Evan Fasciano now

Evan Fasciano playing. Photo: @GospelCrusaderSource: Twitter

As a result, the baby remainedblind for several weeksfollowing his birth.

Harlequin ichthyosis skin disorder

Evan was born with theharlequin ichthyosis skin disorder.

This is a condition that makes the skin to grow rapidly.

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For the baby to live longer, the scales need to be removed daily.

Fasciano has continued to survive every single day with the great care of his parents.

De De, her mother, baths Evan twice a day to soften and remove the excess scales.

Evan Fasciano 2020

Evan Fasciano and his family. Photo: @GospelCrusaderSource: Twitter

However, it is more challenging to take enough calories to maintain good health every day.

His motor skills are also less developed than other children’s of his age.

As a result, he has to use a walking frame to get around.

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Evan Fasciano now

Where is Evan Fasciano now?

He is currently going on with his life amidst the struggles.

Evan Fasciano has lived to fight each day despite his rare skin condition.

His parents did not give up on him, and neither did he give up on himself.

She is a South African actress and costume designer.

She is famous for the roles she played inHotel, a kykNET comedy series, in 2016.

She is now on the soapie7 de Laanas Lana Basson.

Mila was performing in a series that went on air in June/July and also tried out directing in 2020.

Mila Guy age is 28 years.

She was born in Nelspruit, but she lives in Linden, Johannesburg.

Find out more about the actress.

She holds a Degree in Purchasing and Procurement Management from Mount Kenya University.

Email: salmarashidabdul@gmail.com